Resource for Early-onset Alzheimer Disease Research — $25 Gift Card
READR is a study to understand the genetic factors influencing early-onset Alzheimer…
Our study has three goals. First, we are attempting to identify more genetic factors influencing early-onset AD. Second, we want to understand how these genes influence the progression of AD. And, third, we want to understand the relationship between early and late-onset forms of AD. To do this, we need the help of families like yours. We wish to enroll families with early-onset AD, complete cognitive assessments of the families, assess genetic factors in these families, and analyze the patterns of inheritance.
We determine eligibility based on the cognitive status and age of participants and their family members. Participation includes family and medical history questionnaires, assessments of memory and cognitive performance, and a blood draw. With appropriate permission, we will request to speak to family members or their representatives (usually spouses) to better understand memory and dementia history. We usually seek to enroll anyone in the family with AD, dementia, or memory problems, regardless of age, as well as those without dementia if age is over 50. Most activities occur by either phone or video conferencing (i.e., Zoom). To perform the genetic tests a blood sample will be collected in-person by a phlebotomist.
We may request repeat contacts/interviews over time. This is to update you and your family on the progress of the study, and to obtain current information on any cognitive changes among you or your family.
All participants are compensated upon completion of cognitive assessments and the collection of a blood sample.